Category: Multiple Sclerosis
Multiple Sclerosis
Multiple sclerosis (MS) is an invisible chronic illness which could have a profound impact on your life and opportunities. But there is hope and you can fight the MS monster!
First a funny: I like to call MS my zombie sickness: my immune system is eating my brain. Fittingly, I got my diagnosis on Halloween (2017). After my diagnosis, I found out that it is not a death sentence, it’s a life sentence. Still remembering how worried I was before my multiple sclerosis diagnosis.
Thanks to my diagnosis, I actually could figure out what adjustments are needed between my wants and my abilities. Not only that, I learned how to get stronger, notwithstanding my MS.
Here are some of my favorite multiple sclerosis articles:
MS and Exercise
- Getting Strong. Exercises for MS and which Facebook group you should join for multiple sclerosis support.
- Yoga: Start Where You Are. Any chronic illness patient can benefit from yoga.
- Winter hiking with MS. During the winter, spoonies just want to snuggle up at home. Instead, read these tips and tricks how to stay active during the winter.
- Surfing with MS: a challenge; Can’t go to Waikiki and not surf!
- My MS Challenge Got Featured! Enjoy my warrior experience in Hawai’i.
Medical Aspects
- MS, MRI and claustrophobia. How to deal with the inevitable MRI scans;
- LoveYourBrain yoga for MS. An in-progress study to determine whether LoveYourBrain yoga for TBI patients also works for MS;
- Copaxone Shots: My Experience. When I heard I would have to inject myself, I thought I could never do it. It wasn’t as bad as I thought it would be.
Travel for Spoonies
- Travel Tips & Mistakes to Avoid. After finding out about my chronic illness, I had to learn how to improve my travel experience. Don’t make my mistakes!
- Bungee-Jumping off the Space Needle. Surprisingly, we found out that even spoonies can bungee-jump off the Space Needle in Seattle! Find out how.
- Top Ten Tips for Travel with Copaxone. When you live with a chronic illness, you might wonder how you can get your needles and medication through TSA.
- Hiking Diamond Head in Oahu with MS.
- Makapu’u Lighthouse Trail: Whales for the Win; Even an unsuccessful hike can be a win for the average spoonie.
- Manoa Falls Hike. At least there were birds! Since Jurassic Park was filmed there we kept an eye out for stray dinosaurs, but no such luck!
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Winter Hiking with MS: Why It’s Worth It and How to Do It Safely
Winter Hiking for Spoonies Even if you have #multiplesclerosis or have another #ChronicIllness, you can still hike during the winter. A long-time #MSWarrior shares her best tips for winter hiking and all the reasons why you should go out in the winter. Don’t get stuck in your home while there is a huge world out…
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Getting Strong: Exercises for MS
Getting Strong: Exercises for MS Find the best exercises to do if you are living with MS or are a spoonie with another chronic illness. #multiplesclerosis should not keep you from exercising, in fact it should encourage you to exercise. Safety precautions and an overview of how to get strong, even with #MS or for…
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MS, MRI and Claustrophobia: How to Rock It!
MS, MRIs and Claustrophobia Top tips how to cope with an MRI when you have claustrophobia. How to deal with an MRI scan if you suffer from anxiety. An MS warrior shares her experience and ways to beat the claustrophobia monster to get your brain scan. Of course, these tips work for other spoonies too!…
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LivingWithMS: How To Make Your Copaxone Shots An Effective Experience
Sharing my experience with Copaxone shots, after nine months of using them. This was written one day before my I gave myself my last shot. This article will empower you with the knowledge you need to seize each day and live life to the fullest, even with Copaxone. Let’s dive in! Republished and rewritten for…
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Makapu’u Lighthouse Trail: Strong Focus On Whales and Epic Views
The Makapu’u Lighthouse trail is one of the most popular hikes on Oahu, Hawai’i. What to expect on the hike and find out about the lighthouse. Is the Makapuu lighthouse trail easy or hard? How long is the hike? Can you see whales? What is the best time to see whales? Fresnel lens. National Historic…
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The Ultimate Guide to Bungee-Jumping Off The Space Needle!
Have you ever considered bungee jumping off the Space Needle!? When you travel to #Seattle, everyone tells you that you should visit the Space Needle. We took it one step further and ended up bungee-jumping off the Space Needle. Even with my multiple sclerosis! Go find out how I did this and put this on…
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Travel with Copaxone – Tips & Advice for People with MS
Travel With Copaxone Do you live with MS or with another spoonie chronic illness? Do you have multiple sclerosis and want to travel with Copaxone or other meds? A seasoned #MSwarrior shares her top tips for traveling with medication. TSA and needles. Learn from real life experiences visiting many countries and lots of security checks.…
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How to Start Yoga (for Anyone, even if Living With MS)
Do not make my mistakes! Start yoga, whether living with MS or if you are a spoonie with another chronic illness. An MS-warrior shares her story and advice.
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The 10 Best Travel Trips For MS Warriors
Travel With Multiple Sclerosis: Top Tips Real life experiences with MS travel by an #MSwarrior who has been living with #MultipleSclerosis for decades. Spoonies travel. The top travel tips, mistakes to avoid and lessons learned. How to deal with #TSA. How to pack your medication. Can you still travel when you have MS? What to…
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Five Years after MS Diagnosis: Then and Now
A seasoned MS-warrior reflects on the five years since her multiple sclerosis diagnosis. Feeling blue back then, but fine now. How her life changed for the better during these years of living with MS. Getting fit and strong with yoga and hula hooping. Read and enjoy!
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